Every now and then someone reminds you “Why” it’s important. This generally follows a question being asked.
What if Karsyn was my child? This is the question that passed through my mind as Kathy explained what her daughter Karsyn has been going through since being diagnosed with MPS seven years ago. As Kathy spoke it became harder to breathe as I gazed at Karsyn wearing cool sunglasses tilted back in her wheelchair.
The Wallace family are great people. I have the pleasure of doing business with Chad in another industry. After one of our meetings, we were talking about what we do outside of the office, which led to the discussion about family activities and CBD oil. Chad shared that his daughter Karsyn had a rare disorder that was discovered when she was kindergarten age, MPS(learn more here https://mpssociety.org/). Conventional medicines and opioids have awful side effects on Karsyn so their research led them to Charlotte’s Web and CBD testimonies found online. They started giving CBD oil to Karsyn and noticed the benefits. Not knowing the full extent of what CBD products Chad administered to Karsyn, I gave him a quick overview of how we make our Kentucky Proud, Evercure CBD oil and gave him a bottle for Karsyn.
Kathy and Chad started giving Evercure to Karsyn to mitigate her seizures. They told me she was having a seizure or tremor every 10 minutes. By taking CBD Oil it fell to one every 6 days. Evercure was making a positive difference and they ordered more. In appreciation and to quench the Wallace’s thirst for CBD knowledge, I invited them out to the farm to share our experience. It was the first weekend in September and the Wallace family paid us a visit to see the hemp flowers blooming. The T1 started to bloom on August 16th and the Spectrum opened up on August 21st this year. About halfway through their six-week cycle, the flowers were kicking off their signature sweet and stanky aroma. These flowers are the only plant material that goes into our high-quality Evercure CBD oil: buds only, buds only, buds only. The smell alone is worth the ticket price.
When we were all in the barn, social distancing around the tractors and super sacks filled with bud, my mom asked a question about Karysn’s condition since she was in a wheelchair. This is when Kathy went into detail about Karsyn’s struggle to live and their commitment to doing all they can for her and in the process spreading awareness of MPS. To sum it up, Kathy stated MPS is like “ALS and Alteimers had a baby”, combining the worst conditions of these diseases and inflicting them on children.
The average life expectancy for kids with MPS is 12-14 years. Karsyn is 12, the same age as my daughter Callie. This is “why” we are doing this. -TH